Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding Michelle O’Sullivan (Occ. Therapist) 25/2/19 Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding Michelle O’Sullivan (Occ. Therapist) 25/2/19

Rare Diseases: A double-zebra

On Rare Disease Day, 2019, Tianne shares some of her story about living as a double-zebra - with EDS & Marfan Syndrome!

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Disability Awareness, Marfan Syndrome Lucy Atkinson 20/2/19 Disability Awareness, Marfan Syndrome Lucy Atkinson 20/2/19

Because it could change a life: Marfan Syndrome

Because it could change a life: Marfan Syndrome is a rare connective tissue disorder with possibly fatal consequences if not detected early & managed.

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Disability, Ehlers-Danlos Syndrome, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome, Medical Experiences Lucy Atkinson 6/7/18 Disability, Ehlers-Danlos Syndrome, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome, Medical Experiences Lucy Atkinson 6/7/18

Who's got your back?

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Pain Management, Psychology & Couns..., Therapy Options Lucy Atkinson 21/6/18 Pain Management, Psychology & Couns..., Therapy Options Lucy Atkinson 21/6/18

A positive pain management experience

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Adults, Community, Emotional Impacts Michelle O’Sullivan (Occ. Therapist) 7/6/18 Adults, Community, Emotional Impacts Michelle O’Sullivan (Occ. Therapist) 7/6/18

Building each other up: Why we need community

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Articles, Community, Disability, Disability Awareness Megan Taylor 24/5/18 Articles, Community, Disability, Disability Awareness Megan Taylor 24/5/18

When Modern Feminism Isn’t Inclusive of Disability

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Adults, Chronic Illness, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome, Pain Management Michelle O’Sullivan (Occ. Therapist) 13/5/18 Adults, Chronic Illness, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome, Pain Management Michelle O’Sullivan (Occ. Therapist) 13/5/18

Top 10 most challenging symptoms of hypermobility conditions

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Adults, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome Michelle O’Sullivan (Occ. Therapist) 8/5/18 Adults, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum..., Joint Hypermobility Sy..., Loeys-Dietz Syndrome, Marfan Syndrome Michelle O’Sullivan (Occ. Therapist) 8/5/18

The Burger Joint

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Adults, Chronic Illness, Emotional Impacts, Marfan Syndrome, Medical Experiences, Psychology & Couns..., Thought Management Lucy Atkinson 3/5/18 Adults, Chronic Illness, Emotional Impacts, Marfan Syndrome, Medical Experiences, Psychology & Couns..., Thought Management Lucy Atkinson 3/5/18

My First CBT Session

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Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing Michelle O’Sullivan (Occ. Therapist) 6/4/18 Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing Michelle O’Sullivan (Occ. Therapist) 6/4/18

Hypermobility: The condition that takes away...

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Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Couns..., Therapy Options Michelle O’Sullivan (Occ. Therapist) 29/3/18 Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Couns..., Therapy Options Michelle O’Sullivan (Occ. Therapist) 29/3/18

4 keys to hypermobility pain management

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Adults, Chronic Illness, Marfan Syndrome Lucy Atkinson 22/2/18 Adults, Chronic Illness, Marfan Syndrome Lucy Atkinson 22/2/18

The daily realities of Marfan Syndrome

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Adults, Chronic Illness, Emotional Impacts Lucy Atkinson 15/2/18 Adults, Chronic Illness, Emotional Impacts Lucy Atkinson 15/2/18

Finding my voice through Marfan Syndrome

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Adults, Chronic Illness, Emotional Impacts, Medical Experiences Lucy Atkinson 8/2/18 Adults, Chronic Illness, Emotional Impacts, Medical Experiences Lucy Atkinson 8/2/18

Learning you have Marfan Syndrome

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Hypermobility Information, Marfan Syndrome Lucy Atkinson 1/2/18 Hypermobility Information, Marfan Syndrome Lucy Atkinson 1/2/18

What is Marfan Syndrome?

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Adults Erica Ortiz 25/1/18 Adults Erica Ortiz 25/1/18

6 Tips to Prepare You for Mystery Injuries

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Adults Lucy Atkinson 19/1/18 Adults Lucy Atkinson 19/1/18

Making the most of time indoors (when you have a chronic condition)

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Adapting, Adults, Chronic Illness, Disability Awareness Erica Ortiz 11/1/18 Adapting, Adults, Chronic Illness, Disability Awareness Erica Ortiz 11/1/18

Living with Tubes (of all kinds)

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Adapting, Adults, Anxiety, Boundaries, Emotional Impacts, Management Skills, Mental Health Michelle O’Sullivan 21/12/17 Adapting, Adults, Anxiety, Boundaries, Emotional Impacts, Management Skills, Mental Health Michelle O’Sullivan 21/12/17

5 Tips for Managing Christmas Day Anxiety

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Adapting, Adults, Disability, Emotional Impacts, Management Skills, Mental Health, Pacing, Pain Management Michelle O’Sullivan 14/12/17 Adapting, Adults, Disability, Emotional Impacts, Management Skills, Mental Health, Pacing, Pain Management Michelle O’Sullivan 14/12/17

All I want for Christmas is for you to read this post

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