Marfan Syndrome: It can be a pain in the behind
February is Marfan Syndrome Awareness month. Our resident Marfan Syndrome blogger, Lucy, has this extremely important message to share: Marfan Syndrome can be a real pain in the butt – literally.
A lifetime of missed opportunities
Many have the trajectory of their lives determined by the missed opportunities of doctors to make educated diagnoses of Hypermobility-related disorder.
One step forward, two steps back
We've all experienced the feeling of taking one step forward, and then two steps back, right? Erica talks about her latest steps back & how she copes.
