Double Zebra
Rare diseases are highlighted on Rare Disease Day each year. This year we featured Nail Patella Syndrome combined with Hypermobility Spectrum Disorder!
Rare Diseases: What type of Zebra am I?
Knowing you have symptoms of a condition as well as genetic mutations, but still not having a name for it can leave you wondering, what type of zebra am I?
Rare Diseases: A double-zebra
On Rare Disease Day, 2019, Tianne shares some of her story about living as a double-zebra - with EDS & Marfan Syndrome!
Because it could change a life: Marfan Syndrome
Because it could change a life: Marfan Syndrome is a rare connective tissue disorder with possibly fatal consequences if not detected early & managed.
