Double Zebra
Rare diseases are highlighted on Rare Disease Day each year. This year we featured Nail Patella Syndrome combined with Hypermobility Spectrum Disorder!
The Power of a Diagnosis
The Power of a Diagnosis: lots of things change including how others treat you, what treatments you can access, but also, how you treat yourself!
When the pieces finally fit: Hypermobile-EDS
Ever done a puzzle without knowing what picture you were trying to make? Life with Hypermobile-EDS can be a bit like that, as Anel explains.
Finding your way to keep moving forward with Hypermobility
Sometimes we get stuck somewhere on our journey with hypermobility, and we have trouble moving forward. Finding your way is important, as Caitlin explains.
Rare Diseases: What type of Zebra am I?
Knowing you have symptoms of a condition as well as genetic mutations, but still not having a name for it can leave you wondering, what type of zebra am I?
Because it could change a life: Marfan Syndrome
Because it could change a life: Marfan Syndrome is a rare connective tissue disorder with possibly fatal consequences if not detected early & managed.
You, me & my connective tissues
Relationships and connective tissue disorders can be full of challenges, embarrassing moments and growth opportunities. Just watch out for those hips!
What if my OT doesn't understand hypermobility?
A common question I get asked: What if my OT doesn't understand hypermobility? All OT's in Australia have similar core skills...
Why see an Occupational Therapist?
Occupational Therapists (OTs) are trained allied health professionals who work in a range of settings, from hospitals and nursing homes to private practice and schools.
